The Other Side of Dementia

 

A quiet companion for carers - and those left behind.

 

Caring for a partner is a journey few people truly understand.

 

My name is Neil Holloway, and for many years I walked alongside my wife, Jackie, on her journey through frontotemporal dementia and Alzheimer’s disease.

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She was diagnosed, we adapted, we coped, and eventually I had to say goodbye. It was a journey filled with confusion, fear, tenderness, shouting, hard decisions, unexpected kindness, and moments of deep love.

 

Like many families, we found ourselves in a world of new words, assessments, forms, professionals, organisations, and decisions we never wanted to make. We learned as we went along—usually the hard way.

 

After Jackie died, another “journey” began: paperwork, loneliness, rebuilding life, and slowly understanding that grief has no timetable.

 

I hope this site can help you navigate both parts of your dementia journey:  the caring phase and what happens after loss.

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It’s not that the information isn’t out there. It is.

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But if you are already under strain, then what I did, what worked for me and what didn't could help to shoulder some of your burden.

 

That is why I created The Other Side of Dementia.

 

I am not a doctor, lawyer or professional carer. But I am someone who has lived this journey every day for years and learned what truly matters.

 

And most of all, I am someone who knows how confusing and lonely it can feel when you’re trying to make the right decisions for someone you love.

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You might like to start by reading about my journey. Click here.

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Or you might like to access some specific information:

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For: NHS guidelines click here

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For: Social Care Services click here

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For: Talking About Dementia click here

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For: Financial Help click here

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